It’s been one week since the surgery today and Ellie’s doing pretty darn well. Dr. Marx looked at us this morning and said, “You know, honestly, we’ve seen something positive every day.”
Click here or on the photo for a couple of larger shots from this morning.
The milestones Ellie needs to achieve before we can take her home are:
- to be off the oxygen and still have a high oxygen saturation in her blood
- to not be taking any meds through the IV
- to be feeding normally like she would at home
- to not have much fluid on her lungs
Well, they’re weaning her off the oxygen today. She’s not on any oxygen assistance right now and her sats are ok. We’re giving her all of her meds orally today. She’s not taking much of her formula, but she’s putting away eggs, chicken, pizza, macaroni and ice cream like a chip off the old block. On the downside, her chest x-rays are still moderately cloudy, but she’s on heavy diuretics to try to move that fluid, though.
Hopefully we can start to think about home sometime this week.
- Ken
Whew! We’ve been waiting for this post all day! I think this must be the most visited site on the internet!
We will pray specifically for these items you’ve mentioned today. She looks darling, and Colie, you look beautiful. We are so grateful that she is doing well!
Keep up the good work, Ellie. The way you get rid of those people in the white coats and scary looking pokey things is to eat like a little pig, breathe like the wind, and paddle those little piggies right out of that hospital!
It is hard to believe that that spaghetti bowl that surrounded you a week ago has been replaced by a little baby cuddling with Mommy and playing with a pegboard. Yet I don’t know why we should be surprised that she’s doing so well–we all asked for it, didn’t we?
Great is Thy faithfulness, Lord unto me!
Blessings,
Auntie A.
Praise God! She looks so beautiful and her checklist is getting smaller each day. That’s a great sign that she’s eating her food and keeping it down. We will pray for continued healing and that you all can go home soon and safely.
Much love,
Cynthia
One week~what a strong miracle sweetie she is. She is something special that this world really needs. I can’t wait to see all the beauty she will bring in her lifetime. She is a champion!
I’m so proud of her. You guys are the best mum and dad on the planet! You take all the cake.
Hang in there, those lungs will be clear in no time!
Love you!!
mj
Wow, Ellie looks great in these pictures. It’s amazing how resilient children are. I admire your strength, and I hope you get to go home soon. All my love-Rae
WOW!!! Ellie looks soooooooo GREAT!!! and…How sweet to see her in the gown… i feel really special…. already talking about going home…. this is so wonderfully exciting!
lynn
Mmmmm . . . . pizza. Ellie has good taste!!! Glad to see she is able to put it to use!!! Congrats, Ken & Colleen!!! You are doing an amazing job. Can’t wait to have y’all home!!
Hi Ellie, Ken, and Colleen!
Wow! What wonderful, wonderful news! I can’t believe how much progress Ellie has made in one week! She is amazing and you are amazing. Give her a big hug from me.
Great news, New Haven awaits! This family is looking forwarding to seeing you all. Ken and Colleen, I’ll give you a month of Thursdays!
Colleen, that is a gorgeous picture of you and little Ellie! It seems that it is going really well. It is as if all the shadows that haunted you have slowly dissipated with sunlight. And little Ellie is emerging into rays of sunshine and soft breezes, a spring day that has never been so joyous. I am so happy. I know that I keep saying that, but I am just so happy!
love,
me
Just seen your update via Ahmad and I can’t believe how big Ellie has got since we saw her!
We will keep you all in our prayers,
love Rosaleen & James
Oh my gosh, these pictures made me tear up! You both look so snuggly and I just can’t wait to snuggle you over the holidays!
Love you,
Monique
The pictures are great. Colleen you look like you are in MOM heaven. I am glad to see Ellie up and lokking happy & healthy. Give her a big hug and kiss from her aunt Michelle. My mom wanted you to know she has been praying for your family and is happy to hear the good news. We all look forward to the daily updates here in Edenton. Love ya, Michelle
Hello Colleen and Ken
Ellie is always in our prayers, thinking of you all, hopefully everything will go OK
Ahmad
A Happy Halloween to you guys and the Littlest Pun’kin! She has been in our thoughts and prayers. Its wonderful to see the progress and see the smile on your face, Col.
I have to go dry my eyes now, so emotional.
Hope the three of you are home very soon. The pictures are wonderful.