We went to Boston yesterday for a Chest X-ray, EKG, Echo and to see Dr. Marx for Ellie’s post-op check up.
Ellie couldn’t have been better. She was so still and quite during the echo. We were so proud. Unfortunately, I think it had more to do with the Barney video than it did with us. As much as we have tried, we cannot avoid that purple dinosaur.
Dr. Marx had a really good look at everything and said that Ellie’s X-ray, EKG and Echo don’t look that much different then they did when she left Boston hospital. He said that the pulmonary pressures are a bit elevated and she does have some fluid back up into her lungs from her heart right now. He wants to keep an eye on both of these.
Our hope is that maybe, now that her chest infection is clearing, her heart will have a chance to stretch and grow and we can see how her heart and body will cope.
We are scheduled to for an appointment in Boston on December 14,2006. They are going to do a sedated echo to have a really good look.
Dr. Marx did say because of the back up of blood she is going to be more susceptible to lung infections right now. Since we are right in the middle of cold and flu season he did mention it would be best to keep her away from large crowds and from anyone we know has a cold.
So, I foresee us being homebodies for the next few months.
We are neighbors of Grandma & Grandpa in Roanoke, Va.
We are praying for Ellie and hope all continues to go well. God Bless.
The “Barney” thing is like a Boy Scout Merit Badge–no parent gets to “Eagle” level without it.
Eventually this, too, will pass. (By the way, we have a whole closet full of Purple Dinasaur videos if that’s what it takes to keep her happy!) Just plug your ears, and it won’t be so annoying for the parents!
Keep that baby away from other peoples’ cooties, wash your hands, and just take time to be well. We’re praying for that LV to kick in, for the mitral valve to stretch it’s legs, for the pneumonia to resolve, and for Ellie Beth to just get better. Hope you guys are getting some rest now.
Thanks for the update.
xxx ooo
Auntie A.
I’m glad to hear the report from the doctor. Anything that’s not a negative is a positive at this point. I will keeping saying a prayer that Ellie just gets stronger and stronger, when and where she needs it. I miss you guys and I wish I could have stayed longer! Joey and I will come back though! Hang in there and take care.
Me thinks you shouldn’t visit the big apple – maybe we can wiggle up there?
XOXO