Our Super Star

Today started bright and early. We had to be at the hospital at 6:30 am so we were up at 5:20 (not that neither Ken nor I got much sleep last night). Ellie went in at around 7:40 and by 10:15 they were out and the Doctors were showing us X-Rays of our daughter’s heart. It was a bit unreal. We have seen her heart on echo’s so many times it was really weird to see it on a X- ray.

They didn’t see anything new and the cardiac cath just confirmed what they thought. The left side is much smaller than the right side of her heart and she is completely right heart dominate.

Her Doctor said it looks like a septation isn’t a possiblity and we are looking at The Glenn Shunt and the Fontan, but he would be interested to see what they say in Boston. The general feeling is that surgery should occur soon (the blood flow to her lungs is high and her heart is enlarged) to help her to grow and to avoid RSV (cold and flu) season.

Ellie did wonderful and came out of it like a super star. Her legs had to remain still for about 6 hours to allow the vain they went into on her leg to clot up. Any of you who know Ellie will know that was no easy feat keeping her legs still. They actually strapped them to boards. She didn’t fuss or wenge at all until about the last 45 mins or so before we could leave, but by that time even Ken and I were more than a little wengy. Ellie was so good the nurses even commented on it, we are so proud.

We got home around 5:30 pm and Ellie is now in bed.

Lets pray it all goes as smoothly and text book as today did.

Thanks for everyone’s prayers, good thoughts, and postive energy. It really meant a lot.