Yesterday we went to Children’s Hospital Boston to have Ellie checked out.
What a shocker
They put her to sleep and spent almost a hour and a half doing heart scans – regular and 3D. They got the best pictures any doctors have ever had of her heart. Afterwards we got to talk to Dr. Marx (the cardiologist). Dr. Marx told us that he had discussed her heart with Dr. Pigula (the surgeon) and they think they can attempt the repair.
WHAT????!!!!
The repair? That would mean one open heart surgery and a more normal heart, therefore, a much better long term. This is what we had always wanted to hear, but we’ve been told over and over that the left side is too small and her single, common valve doesn’t look like it would make two good valves (this is the cut down version of the problems I won’t bore you all with the details).
Well, the docs in Boston think they can do it. They see people from all around the world and have seen and done surgery on thousands of babies’ hearts. They know what works, not just from books but from acutal studies and surgeries they have done. So if anyone can do it, it’s them. They want to go into surgery with the thought to do the repair and if things don’t look good when they get in, then they will change gears and do the Glenn Shunt.
It’s a bit scary and hard to believe that she may actually have a kind of normal heart (Ken calls it a Franken-Heart because it will be part fabricated and part real). I don’t really want to believe it until the surgeon walks out and says that it is done.
So everyone fingers crossed that this works and the doctors have quick hands and enough valve to work with when they get in there.
Surgery date is OCTOBER 23rd.
Friday, 22. September 2006
Elle Beth (as well as her loving Mom and Dad) have been in our prayers at least once a day since she was born. We have always asked for the Lord to heal this little girl. You are on every prayer list we can think of. You’re being carried on the wings of prayer and the love of friends and family.
Blessings,
Auntie A
Friday, 22. September 2006
With GOD, anything is possible. Keep praying as I will be doing.
Also pray that GOD will be with the doctors, guiding their hands.
Skip
Friday, 22. September 2006
I am so happy and relieved to hear er read such great news! We love yall and we have everything crossed for Ellie! This web site is awesome………What great pictures and that you can leave comments……groovy! love you kerry
Saturday, 23. September 2006
Hey People,
We are SOOOO thrilled to hear the good news. She’s such a determined little girl, she’ll be up and at ‘em in no time… Thanks for the update, the site is great.
Love, V
Sunday, 24. September 2006
G. G. ( Great Grandma )
My prayers and those of the free olk fellowship church are added to all the others Red Green show on tv always says “I am pulling for you remember we are all in this together. ”
Love you bunches
G. G.
Thursday, 19. October 2006
Colleen and Ken and family
My prayers will be with you. Ellie is a fighter and loved by all who have had the pleasure of meeting her.
God has a Special Angel to watch over Ellie!
bless you!
Yvonne
Thursday, 19. October 2006
Thanks for the pictures and updates…. Lee keeps us informed…. love the website!….Thoughts and Prayers are with you all… Ellie is in our churches prayer chain and also in the prayers of the choir and ofcourse the Bornemanns…..
thoughts and prayers and love, lynn & len